What a Day...

In a nutshell....nightmare!! Sparing all the details, Kohen did not have the swallow study done. He did not let the dr look at his throat.He did not let the dr look at his ears (willingly.) He did not let them weigh him. He did not, he did not, he did not.....I will say that he was absolutely terrified when I put him in the chair to have the swallow study done. For those of you who are moms out there, it was one of those moments where he grabbed my neck and was not letting go. He grabbed whatever he could, hair, my HEAVY lead apron, my mom, anything to not have to sit in the chair. I was able to spoon feed him some of the barium but he aspirated every time so we had to quit. After seeing the doctor he decided to wait 4 more months, have another swallow study done and go from there. He is really leaning toward exploratory surgery because he thinks there is something physically wrong. We just wont think about that now. So it is back to the Simply Thick and Prevacid!!! I'll take that rather than the alternative at this point. Thanks for thinking about us and all the calls.

Big Day Tomorrow...

Tomorrow is the dreaded swallow study at ACH. It is so stressful. First, no food for 4 hours before so Kohen will drink the barium. It apparently doesn't taste too good because he will not drink it more than once. This means they only have one shot to see if he is still aspirating. It is a nightmare. They strap him in a carseat with this huge screen beside his face, then give him his cup to watch the barium go down. Please dear Lord let it go down the right pipe!!!

After the swallow study we see the "famous" ENT. He is susposed to be the best in the US so we have heard. We have seen him before and he is super nice. This is our follow up from six months ago when he put Kohen on reflux medicine (again) to see if that is what is causing him to aspirate. If all goes well we will not have to thicken his liquids anymore!! If not, well we just wont think about that right now. I will update tomorrow when we get home.

ZOO TRIP

This was a little train that you could ride through the farm animals.

The water that I wouldn't let him get in!!

This guy was hilarious. He was picking his nose then eating it!! So GROSS!!

Picnic

Yesterday Kohen got to experience his first trip to the zoo. Mom, Shannon, and I braved the boys at the zoo. It was a great day to go. Not too hot or too cold, not crowded at all. We had a blast. Kohen has been sick so he wasn't his normal hyper, bubbly self but still yet he had a good time. After every animal we saw he would say, "Bye Bye, Monkey." (Or whatever animal we were leaving!) We had a picnic lunch which was also a first experience for Kohen. He did great until we were leaving. There were these water fountains that you could throw coins in that some kids were wading in. Nonetheless, Kohen thought he should get to wade in the water also! When I wouldn't let him (there is no other way to put this...) all hell broke lose!!! He threw the biggest tantrum I have ever seen!!! I carried him out screaming, kicking, throwing his head back. I passed this lady at the entrance, she looked at me and said, "I've had those days." I was mortified!!!! All in all it was a good day with the exception of the tantrum!!

Happy 1st Birthday Sam!

The cake was sooo neat.

Creative Kelly had this ball pit in the house. Kohen loved it. Sam wanted to play with Kohen so bad but Kohen was not having it. He is definitely not Mr. Social.

You would not believe how fast Sam can go pushing this car!!

Marsh and Sam. By this point Sam was exhausted.

Parker...so cute!!

He loved the cake!! Wonder where he gets that sweet tooth???

The blow up jumper was a hit. The kids loved it.

Yesterday we went to Sam's first birthday party. It was the social event of the year. We had a blast. It was so fun watching all the kids play together. What a great day it turned out to be. The weather could not have been better. Kelly did a great job getting the party ready for all the kids. I think they felt like they were at a theme park.

Boots

Just recently Kohen has decided to wear his boots with EVERYTHING. Even pajamas. It is a fight to get him to take them off. Everyone keeps telling me to pick my battles but I cannot stand the thought of those hot, stinky boots on him at bedtime. Hopefully it is just a phase!!!

SNOW 2009

Yes, we have already been outside in the "no" this morning! I dont think Kohen really liked it. It couldn't have been that he had on so many clothes that he couldn't walk!! He does have mittens but wouldn't wear them. Needless to say, we didn't stay out too long.

Kohen and Sam

I wonder what they are thinking??

These pictures were taken at Shea's baby shower. Karen Debaun did a great job capturing these sweet moments.